I hope you find the best solutions that will work well for you, whatever the doctors are telling you. There are an amazing number of people who practice alternative complementary therapies which work well for all sorts of health conditions. Naturopathic & Chinese medical practitioners, as well as nutritionists have invaluable advice to offer & consider - so while regular medical doctors are great at diagnosis - there are many paths to healing - whether you can get a complete cure or at least have the best possible ongoing treatment & outcome possible.
Just out of curiosity have you been tested for any of the tick-born conditions such as Lyme, Babesia, or Ehrlichia? Any of them can cause similar symptoms to yours - but require specific testing to rule them out.
I communicate regularly with a woman on Facebook who is trained in both nutritional & naturopathic traditions - who goes by the name of Granny Goodfood. It may sound like a strange name - but trust me when I say she knows her stuff! Here's a link if you want to check her out & friend her for helpful suggestions: https://www.facebook.com/profile.php?id=100001230502119
Though I can't say for sure - it may be possible to turn your diagnosis around or at the very least reduce your symptoms!
Another couple suggestions - check out all food related products you eat regularly, especially processed foods for MSG, and other artificial ingredients, avoid artificial sweeteners especially those like Sweet & Low, Aspartame (sp?) and others. Many of these things cause similar symptoms to what you've described.
Cut back on or eliminate all sugars (or if you use them at all use only organic, turbinado sugars & raw honey) Avoid all products with High Fructose Corn Syrup too as it spikes the blood sugar. Also look up acid vs alkaline foods...A highly acidic diet (which is much of the American Diet) will likely cause you higher pain levels! For those with any form of arthritis - some people suffer more due to either food allergies or sensitivities particularly to foods from the nightshade family: potatoes, tomatoes, eggplant & peppers - even tobacco!
Best wishes to you in finding the solutions & support you need to overcome what is going on for you. Take care, & keep your spirits up, we're here to lend an ear & cheer you on!